Please use this identifier to cite or link to this item: https://hdl.handle.net/1/2472
Title: Improving end-of-life care for people with dementia: a mixed-methods study
Authors: Triandafilidis, Zoi ;Carr, Sally ;Davis, Daneill ;Jeong, Sarah Yeun-Sim ;Hensby, Jacinta ;Wong, Daniel ;Attia, John;Goodwin, Nicholas 
Affliation: Central Coast Local Health District
Gosford Hospital
Issue Date: 30-Jan-2024
Source: 23(1):30
Journal title: BMC Palliative Care
Department: Integrated Care
Abstract: Improving palliative and end-of-life care for people with dementia is a growing priority globally. This study aimed to integrate multiple perspectives on end-of-life care for people with dementia and carers, to identify clinically relevant areas for improvement. The mixed-methods study involved surveys, interviews, and workshops with two participant groups: healthcare professionals and carers (individuals who provided care and support to a family member or friend). Healthcare professionals were invited to complete an online adapted version of the Australian Commission on Safety and Quality in Health Care, End-of-Life Care Toolkit: Clinician Survey Questions. Carers completed a hard copy or online adapted version of the Views of Informal Carers-Evaluation of Services (Short form) (VOICES-SF) questionnaire. Interview schedules were semi-structured, and workshops followed a co-design format. Findings were integrated narratively using a weaving approach. Five areas in which we can improve care for people with dementia at the end of life, were identified: 1) Timely recognition of end of life; 2) Conversations about palliative care and end of life; 3) Information and support for people with dementia and carers; 4) Person-and-carer-centred care; 5) Accessing quality, coordinated care. There are multiple areas where we can improve the quality of end-of-life care people with dementia receive. The findings demonstrate that the heterogeneous and challenging experiences of living with and caring for people with dementia necessitate a multidisciplinary, multifaceted approach to end-of-life care. The identified solutions, including care coordination, can guide local development of co-designed models of end-of-life care for people with dementia.
URI: https://hdl.handle.net/1/2472
DOI: 10.1186/s12904-023-01335-w
Pubmed: https://pubmed.ncbi.nlm.nih.gov/38291401
Publicaton type: Journal Article
Keywords: Dementia
Integrated Care
Appears in Collections:Health Service Research

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